People Living with Aphasia Network

People Living with Aphasia Network

  • Aphasia Support Tools
  • Action and Advocacy
  • Research

Aphasia Support Tools

To use screen reader:

On this page:
Technology
Alternative Treatments
Peer Support
Mental Health Support

Technology

People living with aphasia struggle to use technology. Technology is a part of the way we communicate every day, and people with aphasia deserve support to regain access.

Accessing Technology

  • Learning or re-learning technology is a critically important part of communication.
  • Using technology can help us re-engage with the world.
  • Aphasia impacts knowing how to use technology.
  • There are extraordinary tech tools but they are not taught in helpful ways.
  • Speech therapy usually does nothing to help us re-learn technology so we are left alone to figure out every changing tech.

Technology Support for Aphasia

Understanding Visuals

Aphasia can make it hard to understand details of an object, understand how parts fit together, or see the whole picture.

Social media websites are hard to navigate, and they change all the time!

Speaking

People with aphasia can’t access phone calls, leave a voicemail, or leave an audio note. Technology like video calling relies on our ability to speak.

  • Access to technology for speech
  • Portable speech-generating technology
  • Screen readers for laptops, tablets, and phones
  • Clear language

Listening

People with aphasia need support for their comprehension.

  • Key words
  • Closed captions
  • Clear language

Reading

Aphasia makes reading hard. There are words everywhere on the internet.

  • Bold or underline keywords
  • Clear language

Using ChatGPT

ChatGPT is an AI resource.
Use it to create aphasia accessible text.

Slides and video created by Chelsea Miller, Eli Leto, and Jeanette Hoffman

Thank you to students from the CSU East Bay Aphasia Treatment Program!

Alternative Treatments

Traditional Chinese Medicine

Take herbs and supplements

  • Herbs balance bodily energy and support overall health
  • Herbs can enhance cognitive function
  • Herbs can enhance circulation

Acupuncture

Needle stimulates brain and muscle activity

  • Increases blood flow in the brain
  • Increases connections in the brain
  • Decrease anxiety

Music

Sing, on your own or in a group

  • Increase connection to healthy parts of the brain
  • Improves speaking words and the rhythm of talking
  • Improves attention, memory, and problem-solving

Hyperbaric Chamber

Breathe in pure oxygen in a pressure chamber

  • Increases circulation in the brain, helping with healing
  • Reduces swelling in the brain
  • Enhances the body’s ability to heal

Neurofeedback

Electric signals are sent to the brain to help it rewire

  • Helps enhance the flow of brainwaves
  • Targeted feedback helps specific areas of the brain that were injured
  • Reduces anxiety
  • Improves attention and problem-solving

Meditation

Mindfulness and grounding exercises support recovery

  • Reduce stress and anxiety by understanding how you feel
  • Improves attention, memory, and managing tasks
  • Helps the brain form new connections
  • Reduces fatigue

Peer Support

Traditional support offers people with aphasia nothing but clinical speech therapy.

Peer Support

People living with aphasia deserve to be supported by their communities.

Why peer support?

Speech therapists are in short supply, and few of them come from the same communities as most people with aphasia. Speech therapists are almost all white women, but the Centers for Disease Control reports that people of color, especially men of color, are more likely to have strokes and therefore aphasia. This lopsided ratio shapes the form and culture of treatment. Some researchers have studied the effectiveness of peer therapy. Under this approach, people with aphasia, who are likely more culturally compatible with each other, work together to improve their speech. Some results have been promising. We need to know the most effective models of peer therapy and how they work.

  • There are not enough speech therapists
  • People of color are at high risk for stroke
  • 93% speech therapists are white women
  • Peer therapy helps people with aphasia support each other
  • This can be a better cultural match
  • Need access to peer therapy
  • Need to know how peer therapy works

Results of a study about supporting well-being in people with aphasia thru peer-befriending

Supporting Well-Being Through Peer-Befriending

Results of a study about supporting well-being in people with aphasia through peer-befriending

  • The SUPERB (Supporting well-being in people with aphasia through Peer befriending) study explored peer befriending for aphasia.
  • 10 people who have had aphasia for some years were trained to be peer befrienders. 56 people who have got aphasia more recently were participants in this study.
  • They received visits from trained befrienders.
  • Participants found the study process straightforward and acceptable.
  • Befrienders provided empathy, support, and shared coping strategies.
  • People with new aphasia in the befriending program had better depression scores.
  • Peer befriending is a promising intervention for aphasia.

Race, Aphasia, and Peer Support

Black people with aphasia reflect on the lack of representation, both in the therapists that serve them and within community services.

Video created by Gary Delgado & Channing Kennedy

Peer Support Models

Peer support is compared to other types of therapy groups.

Slides created by Gary Delgado

Mental Health Support

What Helps Aphasia

People with aphasia talk about what has helped them, including singing, playing guitar, and cooking.

Video directed by Gary Delgado and created by Chelsea Miller

Mental Health Support

Depression

  • Studies indicate that the prevalence of depression among individuals with aphasia ranges from 63%.
  • People with aphasia are more likely to experience depression compared to stroke survivors without aphasia.
  • The presence of communication difficulties makes feelings of isolation and frustration worse, increasing the risk of depression.

Aphasia and Depression

  • Frustration and Emotional Distress
    • The struggle to express thoughts and needs can cause immense frustration and emotional distress, contributing to depressive symptoms.
  • Loss of Independence
    • Aphasia often results in a loss of independence in daily activities, which can negatively impact self-esteem and mental health.
  • Slower Rehabilitation Progress
    • Depression can slow down the progress of rehabilitation by reducing motivation and engagement in therapy sessions.
BACK TO TOP ↑
People Living with Aphasia Network

People Living with Aphasia Network

We are people living with aphasia, organizing together for a better future.

  • Aphasia Support Tools
  • Action and Advocacy
  • Research
DONATE NOW