People living with aphasia struggle to use technology. Technology is a part of the way we communicate every day, and people with aphasia deserve support to regain access.
Accessing Technology
Learning or re-learning technology is a critically important part of communication.
Using technology can help us re-engage with the world.
Aphasia impacts knowing how to use technology.
There are extraordinary tech tools but they are not taught in helpful ways.
Speech therapy usually does nothing to help us re-learn technology so we are left alone to figure out every changing tech.
Technology Support for Aphasia
Understanding Visuals
Aphasia can make it hard to understand details of an object, understand how parts fit together, or see the whole picture.
Social media websites are hard to navigate, and they change all the time!
Speaking
People with aphasia can’t access phone calls, leave a voicemail, or leave an audio note. Technology like video calling relies on our ability to speak.
Access to technology for speech
Portable speech-generating technology
Screen readers for laptops, tablets, and phones
Clear language
Listening
People with aphasia need support for their comprehension.
Key words
Closed captions
Clear language
Reading
Aphasia makes reading hard. There are words everywhere on the internet.
Bold or underline keywords
Clear language
Using ChatGPT
ChatGPT is an AI resource. Use it to create aphasia accessible text.
Slides and video created by Chelsea Miller, Eli Leto, and Jeanette Hoffman
Thank you to students from the CSU East Bay Aphasia Treatment Program!
Alternative Treatments
Traditional Chinese Medicine
Take herbs and supplements
Herbs balance bodily energy and support overall health
Herbs can enhance cognitive function
Herbs can enhance circulation
Acupuncture
Needle stimulates brain and muscle activity
Increases blood flow in the brain
Increases connections in the brain
Decrease anxiety
Music
Sing, on your own or in a group
Increase connection to healthy parts of the brain
Improves speaking words and the rhythm of talking
Improves attention, memory, and problem-solving
Hyperbaric Chamber
Breathe in pure oxygen in a pressure chamber
Increases circulation in the brain, helping with healing
Reduces swelling in the brain
Enhances the body’s ability to heal
Neurofeedback
Electric signals are sent to the brain to help it rewire
Helps enhance the flow of brainwaves
Targeted feedback helps specific areas of the brain that were injured
Reduces anxiety
Improves attention and problem-solving
Meditation
Mindfulness and grounding exercises support recovery
Reduce stress and anxiety by understanding how you feel
Improves attention, memory, and managing tasks
Helps the brain form new connections
Reduces fatigue
Peer Support
Traditional support offers people with aphasia nothing but clinical speech therapy.
Peer Support
People living with aphasia deserve to be supported by their communities.
Why peer support?
Speech therapists are in short supply, and few of them come from the same communities as most people with aphasia. Speech therapists are almost all white women, but the Centers for Disease Control reports that people of color, especially men of color, are more likely to have strokes and therefore aphasia. This lopsided ratio shapes the form and culture of treatment. Some researchers have studied the effectiveness of peer therapy. Under this approach, people with aphasia, who are likely more culturally compatible with each other, work together to improve their speech. Some results have been promising. We need to know the most effective models of peer therapy and how they work.
There are not enough speech therapists
People of color are at high risk for stroke
93% speech therapists are white women
Peer therapy helps people with aphasia support each other
This can be a better cultural match
Need access to peer therapy
Need to know how peer therapy works
Results of a study about supporting well-being in people with aphasia thru peer-befriending
Supporting Well-Being Through Peer-Befriending
Results of a study about supporting well-being in people with aphasia through peer-befriending
The SUPERB (Supporting well-being in people with aphasia through Peer befriending) study explored peer befriending for aphasia.
10 people who have had aphasia for some years were trained to be peer befrienders. 56 people who have got aphasia more recently were participants in this study.
They received visits from trained befrienders.
Participants found the study process straightforward and acceptable.
Befrienders provided empathy, support, and shared coping strategies.
People with new aphasia in the befriending program had better depression scores.
Peer befriending is a promising intervention for aphasia.
Race, Aphasia, and Peer Support
Black people with aphasia reflect on the lack of representation, both in the therapists that serve them and within community services.
Video created by Gary Delgado & Channing Kennedy
Peer Support Models
Peer support is compared to other types of therapy groups.
Slides created by Gary Delgado
Mental Health Support
What Helps Aphasia
People with aphasia talk about what has helped them, including singing, playing guitar, and cooking.
Video directed by Gary Delgado and created by Chelsea Miller
Mental Health Support
Depression
Studies indicate that the prevalence of depression among individuals with aphasia ranges from 63%.
People with aphasia are more likely to experience depression compared to stroke survivors without aphasia.
The presence of communication difficulties makes feelings of isolation and frustration worse, increasing the risk of depression.
Aphasia and Depression
Frustration and Emotional Distress
The struggle to express thoughts and needs can cause immense frustration and emotional distress, contributing to depressive symptoms.
Loss of Independence
Aphasia often results in a loss of independence in daily activities, which can negatively impact self-esteem and mental health.
Slower Rehabilitation Progress
Depression can slow down the progress of rehabilitation by reducing motivation and engagement in therapy sessions.